Meet My Little Warrior

Meet Wimberley. She is my little warrior. She is one tough cookie and she has taught me so so much about being a Warrior Mom. 

This tube covered up her precious little face during eleven weeks of summer of 2014. We were admitted into an intensive feeding program May 2014 after a scary visit to the ER for dehydration when Wimberley stopped eating. She was 10 weeks old when we entered the program and 13 weeks old when we left with her NGT (nasal gastrointestinal tube). 

Wimberley became the proud owner of a mini ONE g-button when she was 24 weeks old. She still has it today. These are two of the few pictures I have of her in the hospital before and after her placement surgery and brain MRI. It was so horrible that first night because she didn't want to be held; it hurt her tummy (the incision site) too much to bend it. It hurt my mommy heart to see her in so much pain and no be able to comfort her like I wanted to. It made my heart hurt for moms with babies in the NICU or babies who have multiple surgeries. Although it seemed like the longest day the day after surgery, it is a relatively easy surgery and the recovery time was short and sweet.

Wimberley is fascinated with her button and has started really playing with it more which worries us because we don't want her to pull it out. Here she is trying to help Daddy give her her medicine through her button. 

 

 

 

This is my sweet girl at her one year photo shoot. What a milestone it was for us. She still has her g-button underneath her dress. We love being able to see her sweet face and for her to be able to be more mobile and not restricted with the NGT. Oh, and those uncomfortable stares or awkward questions I would get out in public when she had her NGT have stopped because the common eye that doesn't know her story doesn't know the fighter she is. Stay tuned for more of her story to unfold.